Baker-Gordon Syndrome Registry

Thank you for contributing to the Baker-Gordon Syndrome registry. This data will be collected to help our organization track confirmed cases of Baker-Gordon Syndrome/ SYT1 Syndrome. We will not sell your information nor shall we share any identifiable information without your expressed permission.

Patient Name

First Name

Last Name

Date of Birth

MM

DD

YYYY

Variant (If known)

State/Province and Country

Contact Information

Parent/Guardian Name

First Name

Last Name

Email

Phone

(###)

###

####

I would like to be contacted in the future regarding a Natural History Study and any other applicable study.

Yes

No

Baker-Gordon Syndrome Registry

Families Connect

The Baker-Gordon Syndrome Foundation